Virtual Volunteer Grant & Proposal Writer

About This Opportunity

Stevens-Johnson Syndrome Canada is a non-profit Charity that aims to promote health by providing people suffering from Stevens Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) as well as their families and caregivers with access to related counselling, support groups and information programs. The President, a survivor of SJS/TEN founded this organization about 10 years ago. The intention is to promote education by providing workshops, forums and seminars about the disease and its effects, to the public and medical professionals.

Duties

• Document preparation such as letters, memorandum, certificates, proposals
• Work collaboratively with the finance team
• Compile and proofread materials for potential funding organizations
• Research funding opportunities including government grants
• Arrange possible networking opportunities
• Responsible for seeking funding/sponsors and proposal writing
• Support on various committees
• Other duties as assigned

Desired Qualifications

• Excellent written, editing, and proofreading skills with strong attention to detail.
• Strong verbal communication and interpersonal skills, with the ability to collaborate effectively with team members and external partners.
• Demonstrated experience or working knowledge in grant research, grant writing, and proposal development (nonprofit experience considered an asset).
• Proven organizational and time-management skills, with the ability to manage multiple tasks and meet tight deadlines.
• Ability to work independently and as part of a team with minimal supervision while maintaining accountability.
• Strong research and analytical skills to identify and evaluate funding opportunities, including government and foundation grants.
• Proficiency in Microsoft Office (Word, Excel, Outlook) and Google Workspace (Docs, Sheets, Drive).
• Professionalism, discretion, and the ability to handle confidential information appropriately.
• A commitment to the mission and values of SJS Canada and an interest in supporting rare disease advocacy.

Volunteer Requirements

• Own laptop with internet access and camera
• Minimum Age Over "age of majority" in province of opportunity
• Resume or Linkedin profile
• Reference checks

Skills & Experience

• Bookkeeping
• Accounting
• Fundraising
• Grant Writing / Research