Patient Advocacy Liaison (Central)

About the role

The Central territory will include Arkansas, Illinois, Kansas, Louisiana, Michigan, Minnesota, Missouri, Oklahoma, Texas and Wisconsin.

Responsibilities

• Identify opportunities to build and strengthen relationships with local patients, patient support groups, advocacy organizations, and multicultural centers to ensure we better understand the needs of the patient communities.
• Provide quarterly and annual business plans and contribute to developing the company’s local community engagement plan.
• Represent Agios at key patient-facing events to better understand the community’s perspectives and needs, as well as to collect and share insights to enrich company strategy.
• Identify disease education opportunities and collaborate with internal colleagues, including Agios Clinical Educators and Medical Affairs staff to deliver the right information in the most impactful manner.
• Provide weekly updates to Patient Advocacy team members and cross-functional colleagues, ensuring a one-team mindset to support patients.
• Serve as a liaison between the patient community and internal Agios teams, compliantly communicating key information from Agios programs to relevant stakeholders on a local level.
• Share insights regarding on-the-ground issues, which will feed into Governmental Affairs programing and inform broader company objectives.
• Adhere to Agios’ policies and standard operating procedures and those regulatory and other ethical guidelines relevant to this role.
• Embrace and demonstrate the Agios culture of absolute integrity, focused execution, incisive leadership, collaborative spirit and pursuit of excellence and innovation.
• Meet/exceed agreed goals, delivering successful outcomes for both Agios and the patient communities we serve.

Requirements

• Bachelor’s degree in science, social science, or a related field.
• Minimum of 3 years of patient advocacy experience, with 8+ years of progressive experience in a healthcare / biopharma setting.
• Proven track record of working collaboratively and with flexibility in a fast-paced, multi-tasking environment, while maintaining operational quality.
• Ability to think critically, strategically, and cross functionally.
• Goal oriented, self-starter with a strong ability to self -manage.
• Innovative mindset and a proven ability to challenge the status quo.
• Ability to connect and build trusted relationships with patients, caregivers, and local advocacy organizations.
• Strong understanding of the patient and caregiver experience in rare diseases.
• Team-minded and able to react constructively in a high-energy and fast paced environment.
• Excellent interpersonal skills, including oral and written communication skills and strong presentation skills.
• Ability to build and sustain relationships with advocacy groups, government officials, and community leaders.
• Ability to relate with a diverse group of individuals and develop rapport quickly.
• Previous work with patients and advocacy groups in thalassemia, sickle cell disease or other rare diseases is preferred.
• Proficient in basic computer skills and Microsoft Word systems.
• Valid driver's license and clean driving record.
• Ability and willingness to travel a minimum of 50% of the time.

Qualifications

• Must reside within the Central territory (Arkansas, Illinois, Kansas, Louisiana, Michigan, Minnesota, Missouri, Oklahoma, Texas and Wisconsin).
• Regular conversations with manager are encouraged to ensure alignment on in-person presence/expectations.
• Travel may be required commensurate to the above job description and/or to attend team meetings and other company events.

Skills

• Strong understanding of the patient and caregiver experience in rare diseases.
• Ability to build and sustain relationships with advocacy groups, government officials, and community leaders.
• Ability to relate with a diverse group of individuals and develop rapport quickly.

Benefits

• Premium benefits package.
• Competitive and equitable performance-based compensation.
• Psychological safety.
• Commitment to diversity.
• Commitment to community.