Patient Advocacy Liaison

SUMMARY

The Patient Advocacy Liaison is responsible for strategic engagement with patient advocacy groups to advance patient-centered initiatives, improve disease awareness, enhance access to care, and support organizational objectives.

ESSENTIAL FUNCTIONS

• Execute patient advocacy and partnership strategies for a defined portfolio of patient advocacy groups (PAGs) by developing annual engagement plans that include clear objectives, key activities, success metrics, and quarterly progress reviews.
• Ensure that the planned strategic engagements are executed against a measurable plan and that each priority relationship demonstrates progress against shared business objectives.
• Cultivate and maintain productive relationships with PAG leadership, caregivers, patients, and community stakeholders while adhering to the highest standards of compliance and documentation.
• Conduct structured engagement reviews with priority organizations at least twice annually and maintain accurate records of engagement objectives, outcomes, and follow-up actions.
• Capture, analyze, and synthesize patient and community insights into actionable reports and recommendations for internal stakeholders.
• Deliver regular insight summaries and ensure patient perspectives are incorporated into relevant advocacy, patient engagement, and asset planning discussions.
• Contribute meaningful patient insights to a minimum of two key planning initiatives annually.
• Support the planning and execution of local and national conferences, roundtables, community programs, and advocacy events within assigned PAG communities.
• Develop event objectives, identify opportunities for partnership engagement, complete structured RoE assessments following priority engagements, and communicate key learnings and recommended actions to relevant stakeholders within established timelines.
• Maintain accurate and timely documentation of all advocacy activities, engagements, funding requests, and program outcomes.
• Ensure all activities are conducted in accordance with applicable legal, regulatory, and company policies, with timely completion of required compliance documentation and reporting.

REQUIRED EDUCATION, EXPERIENCE, and SKILLS

• Accredited Bachelor’s degree
• 5+ years of total experience in patient advocacy or patient engagement work developing and managing strategic relationships with patient advocacy organizations, professional societies, or healthcare stakeholders.
• Demonstrated experience leading cross-functional initiatives and influencing without direct authority.
• Experienced in developing and delivering materials in a range of settings, including external presentations.
• Demonstrated ability to manage multiple projects simultaneously, establish priorities, and track progress against defined objectives and timelines.
• Strong written and verbal communication skills with the ability to synthesize and communicate insights to diverse audiences.
• Demonstrated ability to bring together stakeholders and build consensus on strategies among peers and across different reporting structures.
• Collaborative, team-oriented approach to work.
• "Patient First" customer service orientation – puts the patient at the center of all business activities.

PREFERRED QUALIFICATIONS, SKILLS and COMPETENCIES

• Accredited Bachelor’s degree required in Life Sciences, Public Health, Nursing, Healthcare Administration, Communications, Public Policy, Business, or a related field.
• Experience in neuroscience, rare disease, or specialty pharmaceuticals.
• Established relationships with national or regional patient advocacy organizations.
• Experience supporting product launches, lifecycle management, or patient-centered initiatives.
• Experience working across Medical Affairs, Commercial, Market Access, Public Affairs, Legal, and Compliance.
• Demonstrated success using data to measure engagement outcomes and return on engagement (RoE).