Research Partnerships Manager

About Us

At Citizen Health, we have a singular mission: to improve the lives of the 350 million+ people living with rare and complex conditions. We empower patients with seamless access and control over their health data that they can share across our multi-sided platform with caregivers, providers and researchers to illuminate better treatment and support options, while bringing therapies to patients faster. We support thousands of patients, work with a rapidly growing network of patient advocacy organizations, and innovate with leading biopharma organizations to accelerate therapies, always ensuring patients remain at the center.

We are a team of patients, caregivers, researchers and builders who have had first-hand experience across the spectrum of rare disease. Led by a seasoned founding team with a history of successful exits in healthcare and consumer startups, and supported by top-tier investors, we are a close-knit, mission-driven group seeking exceptional talents to join us.

Responsibilities

• Partnership Management & Point of Contact
  • Serve as the day-to-day point of contact for a strategic research partnership, building trusted, productive working relationships with partner counterparts
  • Lead regular partner meetings; manage communications, agendas, and follow-through on action items and shared deliverables
  • Field incoming partner and client questions, resolving what you can and triaging the rest to the right internal experts
• Survey Development, Documentation & QA
  • Navigate, interpret, and help refine data dictionaries shared by our research partners
  • Build surveys in our internal survey-building tool, translating requirements and logic into a working, accurate instrument
  • Perform quality assurance on built surveys to ensure they flow as intended, that branching logic behaves correctly, and that the experience performs reliably for end users
  • Act as steward of the data-dictionary "contract" between partners and Citizen, keeping specifications tight and well-communicated to prevent scope drift between what is agreed and what is delivered
• Data Requests & Delivery Coordination
  • Serve as the intake point for data requests from patient advocacy groups (PAGs) and nonprofit researchers, managing each request from submission through fulfillment
  • Coordinate timely, accurate delivery of data to PAGs once a request is confirmed to be in scope

Qualifications

Required

• Bachelor's degree in a life science, public health, social science, or related field
• 3+ years of experience in program or project management, research coordination, clinical operations, or a similar role, ideally in healthcare, health tech, life sciences, or a research setting
• Familiarity with research methods and study concepts sufficient to navigate technical documentation and triage research and data questions appropriately
• Comfort working with structured data specifications (e.g., data dictionaries) and building or configuring surveys in a no-code/low-code tool (e.g., Typeform, Qualtrics, REDCap, or similar)
• Demonstrated ability to manage multiple concurrent projects and external partners, leading through cross-functional collaboration without formal authority
• Excellent written and verbal communication skills, with strong attention to detail and documentation rigor
• Comfortable working autonomously in a fast-paced startup environment

Preferred

• Experience in rare disease, patient registries, natural history studies, or patient-reported outcomes
• Prior experience serving as a client- or partner-facing point of contact
• Familiarity with survey methodology, branching/skip logic, and survey QA / user acceptance testing
• Familiarity with clinical or health data standards

Who You Are

You are a highly organized operator who thrives on coordination and keeping many threads aligned toward a shared goal. You're comfortable with structured data and technical documentation, and you're curious enough about research to ask good questions and know when to bring in an expert. You build trust easily with both scientists and external partners, you're proactive about risk, and you can lead without formal authority. You love the pace and ambiguity of a startup and you take pride in tight documentation and clean handoffs.

Benefits

• Ownership: You'll have a seat at the table and your voice will shape the company.
• Growth: We're scaling fast, and so will your responsibilities and opportunities.
• Culture: Transparent, inclusive, and genuinely fun.
• Competitive salary + equity
• Health, dental, and vision insurance
• Unlimited PTO

Pay

Compensation Range: $90K - $110K