Director U.S. Patient Advocacy

Summary

Reporting to the Sr. Director, the Director, U.S. Patient Advocacy will develop and lead a rare disease patient advocacy strategy and launch in a designated therapeutic area(s). They will build a multifaceted plan in alignment with company milestones and develop programs and initiatives that drive disease awareness, support launch readiness and commercialization success, and collaborate with advocacy groups to cocreate resources and initiatives that empower patients and caregivers.

Essential Functions

• Develop and execute U.S. patient advocacy strategy for a designated therapeutic area(s) in neuroscience
• Implement strategies to drive early treatment urgency, disease awareness, support important regulatory and commercial milestones, and build an integrated advocacy plan in alignment with Corporate Affairs, Medical, HEOR, Patient Services, and Market Access
• Build trustful relationships with patient advocacy groups and community leaders to ensure productive partnerships and alliance
• Lead and execute communications and data dissemination plans with patient advocacy organizations, including the development of community letters, infographics, and presentation materials
• Develop community councils and other forums to identify, publish on, and address community unmet needs
• Identify opportunities and build strategic solutions and innovative initiatives to address community unmet needs and to anticipate access challenges
• Manage patient advocacy events and engage employees to advocate for the patient voice and experience
• Represent Lundbeck at scientific conferences and forums to support partnerships and outcomes for patients
• Build and maintain U.S. Patient Advocacy annual plan and budget in alignment with cross-functional colleagues
• Ensure compliant, ethical, and transparent stakeholder engagement and communications

Required Education, Experience, and Skills

• Accredited bachelor’s degree
• 8+ years of pharma / biotech experience
• 5+ years of external engagement / public affairs / patient advocacy experience
• Direct experience leading rare disease patient advocacy commercialization launch strategy and execution
• Excellent communications skills and strong interpersonal skills that can build and progress relationships internally as well as externally
• Experience developing and managing annualized patient advocacy plans and budgets
• Solid understanding of the therapeutic lifecycle from pre-clinical to post-commercialization
• Knowledge of Legal, Regulatory, & Compliance guidelines for engaging patient advocacy communities
• Ability to work in a fast-paced environment, prioritize tasks, and successfully manage multiple projects in a matrixed organization

Preferred Education, Experience, and Skills

• Experience working in rare disease is preferred
• Strong preference to be based in Deerfield, IL Office