Director, US Patient Advocacy & Professional Engagement
About the role
We're seeking a Director, US Patient Advocacy & Professional Engagement to help expand what's possible for patients with serious diseases. Reporting to the VP, Patient Advocacy, this role will build and lead US-based patient advocacy and professional society engagements and collaborations, focusing on Bronchiectasis and NTM Lung Disease.
Responsibilities
Develop and implement an External Partner engagement strategy aligned to internal business needs and external community needs.
Partner with Patient Organizations to identify and implement innovative initiatives to empower patient communities to seek optimal and informed care.
Participate in and support Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement.
Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives and partnerships intended to address the evolving medical science related to Insmed’s therapeutic areas, as directed.
Provide insight into Health Policy and Access & Reimbursement trends to ensure Patient Organizations have a thorough understanding of the access and reimbursement landscape.
Implement a detailed framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle.
Engage with patient advocacy groups, foundations, and individual patients to see their point of view and needs as it relates to Patient-Focused Drug Development.
Establish and maintain strong relationships with key collaborators in the patient community.
Collaborate with cross-functional teams to ensure patient perspective is internally understood and incorporated into company culture and patient needs are considered at all stages of product development.
Collaborate with Clinical Development, Medical Affairs, Regulatory, Corporate Communications, Human Resources, Legal, and Compliance to ensure that Insmed’s core values and corporate brand are represented in internal and external initiatives.
Represent the company in external forums and conferences related to patient advocacy.
Requirements
A Bachelor's degree in life sciences, healthcare, public health, or a related field and 10+ years’ experience in patient advocacy/engagement or closely related roles within the biotechnology and pharmaceutical healthcare industries.
Deep understanding of respiratory conditions, including NTM Lung Disease and Bronchiectasis, with an ability to communicate complex scientific concepts to diverse audiences.
Consistent track record of performance in developing and driving strategic projects, including leading budgets.
Excellent communication and social skills to engage with patients, advocacy groups, and internal collaborators effectively.
Experience working across multiple therapeutic areas and prioritizing appropriately.
Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team.
Deep appreciation for patients and their families, with a passion for advocating on their behalf.
Knowledge of regulatory and ethical considerations related to patient advocacy and engagement.
Familiarity/experience with regulatory and pharmaceutical legal promotional review processes.
Passionate for making a difference in the lives of patients with serious and rare disease.
Acute organizational skills with a strong attention to detail, clarity, accuracy, and conciseness.
Qualifications
Advanced degree (MBA, PharmD, PhD, MD) strongly preferred.
Skills
Strong project management and strategic planning skills.
Excellent interpersonal and communication skills.
Ability to manage multiple priorities and deadlines.
Strong analytical and problem-solving skills.
Ability to work independently and collaboratively.
Strong knowledge of patient advocacy and engagement best practices.
Ability to navigate complex healthcare systems and regulations.
Benefits
Comprehensive medical, dental, and vision coverage and mental health support, annual wellbeing reimbursement, and access to our Employee Assistance Program (EAP).
Generous paid time off policies, fertility and family-forming benefits, caregiver support, and flexible work schedules with purposeful in-person collaboration.
401(k) plan with a competitive company match, annual equity awards, and participation in our Employee Stock Purchase Plan (ESPP), and company-paid life and disability insurance.
Employee resource groups, service and recognition programs, and meaningful opportunities to connect, volunteer, and give back.
Pay
$177,000.00 - $242,000.00 Annual
Schedule
This is a fully remote role. Occasional travel for team meetings or events may be expected. Travel Requirements: Approximately 10-20% domestic travel.