Director, US Patient Advocacy & Professional Engagement

About the Role

We’re looking for a Director, US Patient Advocacy & Professional Engagement to help us expand what’s possible for patients with serious diseases. Reporting to the VP, Patient Advocacy, this role will play a pivotal part in building and leading US-based patient advocacy and professional society engagements and collaborations, with a focus on Bronchiectasis and NTM Lung Disease. The primary goal is to cultivate positive relationships with patient communities, advocacy groups, professional medical associations, and individual patients to better understand their needs, experiences, and challenges. This individual will provide the patient voice and perspective in designing and implementing clinical development programs, ensuring patient insights influence decision-making, clinical strategies, and support initiatives. You will also lead engagements with professional medical associations to evolve disease understanding and education.

Responsibilities

• Develop and implement an External Partner engagement strategy aligned to internal business needs and external community needs.
• Partner with Patient Organizations to identify and implement innovative initiatives to empower patient communities to seek optimal and informed care.
• Participate in and support Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement.
• Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives and partnerships addressing evolving medical science in Insmed’s therapeutic areas.
• Provide insight into Health Policy and Access & Reimbursement trends to ensure Patient Organizations understand the access and reimbursement landscape.
• Implement a detailed framework to incorporate patient experience into all critical business decisions across the asset lifecycle.
• Engage with patient advocacy groups, foundations, and individual patients to understand their perspectives and needs related to Patient-Focused Drug Development.
• Establish and maintain strong relationships with key collaborators in the patient community.
• Collaborate with cross-functional teams to ensure the patient perspective is internally understood and integrated into company culture and product development.
• Work with Clinical Development, Medical Affairs, Regulatory, Corporate Communications, Human Resources, Legal, and Compliance to ensure Insmed’s core values and corporate brand are represented in internal and external initiatives.
• Represent the company in external forums and conferences related to patient advocacy.

Requirements

You must have a Bachelor's degree in life sciences, healthcare, public health, or a related field and 10+ years’ experience in patient advocacy/engagement or closely related roles within the biotechnology and pharmaceutical healthcare industries. Additionally, you have:

• Deep understanding of respiratory conditions, including NTM Lung Disease and Bronchiectasis, with an ability to communicate complex scientific concepts to diverse audiences.
• Consistent track record of performance in developing and driving strategic projects, including leading budgets.
• Excellent communication and social skills to engage with patients, advocacy groups, and internal collaborators effectively.
• Experience working across multiple therapeutic areas and prioritizing appropriately.
• Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team.
• Deep appreciation for patients and their families, with a passion for advocating on their behalf.
• Knowledge of regulatory and ethical considerations related to patient advocacy and engagement.
• Familiarity/experience with regulatory and pharmaceutical legal promotional review processes.
• Passion for making a difference in the lives of patients with serious and rare diseases.
• Acute organizational skills with a strong attention to detail, clarity, accuracy, and conciseness.

Nice to Have

• Advanced degree (MBA, PharmD, PhD, MD) strongly preferred.

Schedule

This is a fully remote role. It can be performed effectively from anywhere while staying connected to your Insmed team and community. Occasional travel for team meetings or events may be expected. This role requires occasional domestic travel (approximately 10-20%).

Pay

Pay Range: $177,000.00 - $242,000.00 Annual

Benefits

Highlights of our U.S. offerings include:

• Comprehensive medical, dental, and vision coverage and mental health support, annual wellbeing reimbursement, and access to our Employee Assistance Program (EAP).
• Generous paid time off policies, fertility and family-forming benefits, caregiver support, and flexible work schedules with purposeful in-person collaboration.
• 401(k) plan with a competitive company match, annual equity awards, and participation in our Employee Stock Purchase Plan (ESPP), and company-paid life and disability insurance.
• Company Learning Institute providing access to LinkedIn Learning, skill-building workshops, leadership programs, mentorship connections, and networking opportunities.
• Employee resource groups, service and recognition programs, and meaningful opportunities to connect, volunteer, and give back.

Eligibility for specific programs may vary and is subject to the terms and conditions of each plan.