Director, US Patient Advocacy & Professional Engagement

About the role

At Insmed, every moment and every patient counts — and so does every person who joins in. As a global biopharmaceutical company dedicated to transforming the lives of patients with serious and rare diseases, you’ll be part of a community that prioritizes the human experience, celebrates curiosity, and values every person’s contributions to meaningful progress. That commitment has earned us recognition as Science magazine’s No. 1 Top Employer for five consecutive years, certification as a Great Place to Work® in the U.S., and a place on The Sunday Times Best Places to Work list in the UK. For patients, for each other, and for the future of science, we’re in. Are you? We’re looking for a Director, US Patient Advocacy & Professional Engagement to help us expand what’s possible for patients with serious diseases. Reporting to the VP, Patient Advocacy, the Director, US Patient Advocacy & Professional Engagement will play a pivotal role in building and leading US-based patient advocacy and professional society engagements and collaborations, with a focus on Bronchiectasis and NTM Lung Disease. The primary goal for this role will be to cultivate positive relationships with patient communities, advocacy groups, professional medical associations and individual patients, to better understand their needs, experiences, and challenges. This individual will be instrumental in providing the patient voice and perspective as we design and implement our clinical development programs. You will be the bridge between patients, patient organizations, and our organization, ensuring their perspectives influence our decision-making processes, clinical development strategies, and patient support initiatives. You will lead engagements with professional medical associations by setting the strategy and leading execution to evolve disease understanding and education.

Responsibilities

• Develop and implement an External Partner engagement strategy aligned to internal business needs and external community needs.
• Partner with Patient Organizations to identify and implement innovative initiatives to empower patient communities to seek optimal and informed care.
• Participate in and support Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement.
• Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives and partnerships intended to address the evolving medical science related to Insmed’s therapeutic areas, as directed.
• Provide insight into Health Policy and Access & Reimbursement trends to ensure Patient Organizations have a thorough understanding of the access and reimbursement landscape.
• Implement a detailed framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle.
• Engage with