Director, Patient Advocacy and Operations

About the role

The Director, Patient Advocacy & Operations works as part of the Corporate & Patient Affairs (C&PA) team with two key areas of focus: cultivating and supporting strategic partnerships with patient advocacy organizations and day-to-day management of key Patient Advocacy and Corporate Affairs operations.

Responsibilities

• Partner closely with advocacy leaders and the broader patient community to advance key initiatives, including but not limited to:
• Executing the patient advocacy strategy in alignment with corporate objectives
• Fostering strong, strategic relationships with patient leaders, caregivers, and advocacy organizations to inform company programs and priorities
• Leading the planning and management of Patient Community Advisory Panels/Boards
• Conducting one-on-one engagements with patient advocacy leaders to identify needs, insights, and opportunities for collaboration
• Serving as the operational lead for the Patient Advocacy Grants, Sponsorships & Donations committee, including budget oversight and end-to-end management of the submission process
• Representing Dyne at patient advocacy events, conferences, and advisory boards
• Collecting, synthesizing, and sharing patient community insights across functional teams
• Supporting clinical trial awareness and recruitment efforts through patient engagement and community-focused initiatives
• Collaborating with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate the patient voice into R&D, clinical trial design, and commercialization efforts
• Managing and owning patient engagement-related contracting, ensuring compliance and timely execution
• Leading operational processes for advancing patient advocacy materials through Medical Legal Review (MLR), ensuring accuracy, alignment, and compliance

Requirements

• Bachelor’s degree in a relevant field and a minimum of 10+ years of related experience (social work, genetic counseling, nursing, public health preferred)
• 8+ years of experience in patient advocacy in the biotech/pharmaceutical industry, preferably within a clinical stage biotechnology company
• Proven experience developing and sustaining partnerships with patient advocacy organizations and community leaders
• Deep understanding of rare diseases and the unique needs of rare disease communities
• Strong understanding of the Patient-Focused Drug Development (PFDD)
• Exceptional communication, diplomacy, and cross-functional collaboration skills
• Experience managing budgets, teams, and compliance-sensitive partnerships within a regulated environment
• Proven experience partnering with clinical teams on trial awareness and recruitment efforts
• Broad knowledge of the biopharma landscape and a solid working understanding of the drug development process
• Strong interpersonal skills with the ability to influence without authority and work effectively across diverse functions and personalities
• Compassionate, patient-centered mindset, and a high degree of personal integrity
• Able to manage multiple simultaneous projects, navigate ambiguity, and thrive in a fast-paced, dynamic environment
• Experience with Patient Advocacy sponsorship contracting processes
• Proven operations experience and excellent project, vendor, and budget management capabilities with a demonstrated ability to deliver results
• Strong organizational skills and attention to detail
• Bilingual fluency in Spanish is a plus
• Overnight travel will be required; up to 20%

Qualifications

• Education: Bachelor’s degree in a relevant field
• Experience: Minimum 10+ years of related experience

Benefits

Not specified

Pay

$196,000 - $240,000 USD

Schedule

Not specified