Director, Patient Advocacy (Enzyme Therapies, U.S.)

About the role

Define, lead and implement BioMarin’s patient advocacy activities in assigned therapeutic areas and geographies ensuring that patient insights are understood by pipeline/therapeutic area and regional leaders and considered in making key business decisions.
Position BioMarin as the global leader in patient advocacy in assigned therapeutic areas/geography, representing the company and building trust with key advocacy groups.
Lead the development of initiatives to connect patient communities to the respective Business Unit / International teams and ensure that our work is advancing key priorities.
Develop and nurture open and transparent professional relationships with key Patient Advocacy Groups (PAGs) and determine opportunities for developing strong partnerships, including co-created/collaborative programs in alignment with business priorities.
Implement community outreach to advocacy groups in assigned therapeutic areas/geographies from preclinical development through commercialization to help inform activities such as clinical trial design and to understand patient need; ensure feedback is promptly delivered to community.
Career Development
Support Patient Advocacy Therapeutic Area/Geography Lead and represent Patient Advocacy for assigned areas of responsibility in key cross-functional governance forums.
Act as a point of contact in assigned therapeutic area/geography for incoming enquiries from patient groups including Grants and Sponsorships, providing compliant guidance and support as required.
Develop strategic patient advocacy plan for the assigned therapeutic area/geography aligned with other functional areas; ensuring that the right level of resources is invested at the right time.

Responsibilities

• Ensure Patient Advocacy engagement and activations align to the business priorities in assigned therapeutic area/geography
• Support Patient Advocacy Therapeutic Area/Geography Lead in creating opportunities for BioMarin employees to experience and understand the lived experiences of patients and families impacted by genetically defined conditions in the assigned therapeutic area
• Travel - approx. 30%

Requirements

• 10+ years of patient advocacy experience in the healthcare/biopharma setting. Rare disease experience is preferred.
• A proven track record in patient engagement / advocacy with demonstrated impact on business outcomes from preclinical research to clinical trials and commercial outputs
• Sound judgment and the ability to work seamlessly with colleagues in assigned therapeutic area and externally
• Ability to influence cross-functional teams and build consensus across the assigned therapeutic area/geography
• Demonstrated knowledge of regulations governing patient advocacy and deep understanding of the regulatory/healthcare environment in assigned therapeutic area/geography
• Collaborative working style and working as part of a growing team

Qualifications

• BS/BA in science, business or liberal arts; advanced degree preferred

Skills

• Strong communication skills
• Excellent organizational and project management skills
• Ability to work independently and as part of a team
• Experience with patient advocacy organizations and patient communities

Benefits

• Comprehensive benefits package including health insurance, retirement plans, and paid time off

Pay

Competitive salary commensurate with experience

Schedule

Full-time position with remote work option within 100 miles of San Rafael, CA