Director, Patient Advocacy and Operations

Primary Responsibilities

• Partner closely with advocacy leaders and the broader patient community to advance key initiatives.
• Foster strong, strategic relationships with patient leaders, caregivers, and advocacy organizations to inform company programs and priorities.
• Lead the planning and management of Patient Community Advisory Panels/Boards.
• Conduct one-on-one engagements with patient advocacy leaders to identify needs, insights, and opportunities for collaboration.
• Serve as the operational lead for the Patient Advocacy Grants, Sponsorships & Donations committee.
• Manage and own patient engagement–related contracting, ensuring compliance and timely execution.
• Lead operational processes for advancing patient advocacy materials through Medical Legal Review (MLR).

Education And Skills Requirements

• Bachelor’s degree in a relevant field and a minimum of 10+ years of related experience (social work, genetic counseling, nursing, public health preferred).
• 8+ years of experience in patient advocacy in the biotech/pharmaceutical industry, preferably within a clinical stage biotechnology company.
• Proven experience developing and sustaining partnerships with patient advocacy organizations and community leaders.
• Deep understanding of rare diseases and the unique needs of rare disease communities.
• Strong understanding of the Patient-Focused Drug Development (PFDD).
• Exceptional communication, diplomacy, and cross-functional collaboration skills.
• Experience managing budgets, teams, and compliance sensitive partnerships within a regulated environment.
• Proven experience partnering with clinical teams on trial awareness and recruitment efforts.
• Broad knowledge of the biopharma landscape and a solid working understanding of the drug development process.
• Strong interpersonal skills with the ability to influence without authority and work effectively across diverse functions and personalities.
• Compassionate, patient centered mindset, and a high degree of personal integrity.
• Able to manage multiple simultaneous projects, navigate ambiguity, and thrive in a fast paced, dynamic environment.
• Experience with Patient Advocacy sponsorship contracting processes.
• Proven operations experience and excellent project, vendor, and budget management capabilities with a demonstrated ability to deliver results.
• Strong organizational skills and attention to detail.

Company Overview

Dyne Therapeutics is focused on delivering functional improvement for people living with genetically driven neuromuscular diseases. We are developing therapeutics that target muscle and the central nervous system (CNS) to address the root cause of disease. The company is advancing clinical programs for Duchenne muscular dystrophy (DMD) and myotonic dystrophy type 1 (DM1) as well as a preclinical programs for facioscapulohumeral muscular dystrophy (FSHD) and Pompe disease. At Dyne, we are on a mission to deliver functional improvement for individuals, families and communities. Learn more at https://www.dyne-tx.com/, and follow us on X, LinkedIn and Facebook.