Grant Writer

We are looking for an experienced Grant Writer (Freelance, Remote) to support a nonprofit organization dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease. The organization raises funds to advance scientific research and treatments, support affected individuals and families, and strengthen the global Barth syndrome community. The ideal candidate has a strong track record of researching funding opportunities and developing compelling, successful grant proposals for nonprofit, healthcare, rare disease, medical research, or patient advocacy organizations. Through strategic prospect research and high-quality proposal development, this role will help strengthen the organization's institutional funding pipeline and clearly communicate its impact, priorities, and funding needs to prospective funders. Responsibilities Research and identify relevant foundation, corporate, government, and institutional grant opportunitiesDevelop and submit compelling grant proposals, letters of inquiry, applications, and supporting materialsCollaborate with internal stakeholders to gather research, program, impact, financial, and organisational information needed for applicationsMaintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomesSupport grant reporting, funder communications, and proposal revisions as needed Requirements Strong track record of developing successful grant proposals and securing institutional fundingSignificant grant writing and fundraising experience within nonprofit, healthcare, medical research, rare disease, patient advocacy, or related sectorsStrong understanding of grant prospecting, funder research, proposal strategy, and institutional fundraisingStrong grant research, proposal writing, storytelling, editing, and communication skillsHighly organised and able to manage multiple applications and deadlines independently