Sr. Manager, Patient Advocacy, Global Rare Diseases

Based in Parma, Italy, Chiesi is an international research-focused biopharmaceutical group with 90 years’ experience, operating in 31 countries. More than 8,000 employees across the group are united by a singular purpose: promoting a healthier world for our people, patients, and the planet. This drives us as we research, develop, and market innovative drugs across our main therapeutic areas.

At Chiesi, we are thinking generations ahead, driving sustainable innovation with purpose. This fosters a culture of reliability, transparency, and ethical behavior at every level. As a Benefit Corporation and a certified B Corp, we have embedded sustainability in our bylaws and continuously measure our impact. Diversity, inclusion, and equal opportunity are at the heart of who we are. We believe our differences make us stronger.

About the Role

Chiesi Global Rare Diseases is a Chiesi Group’s business unit established in February 2020, focused on research, development, and commercialization of treatments and patient support services for rare and ultra-rare disorders, many of which have limited or no treatments available. This unit is based in Boston, Massachusetts, with strong synergy with the headquarters in Parma. The Rare unit focuses on research and product development for lysosomal storage diseases, rare hematology, ophthalmology disorders, and rare immunodeficiencies.

We are looking for a highly motivated, collaborative, and compassionate individual for the position of Sr. Manager, Patient Advocacy in the Global Rare Diseases business unit. Reporting to the Head of Patient Advocacy, this individual will develop and execute programs in the US, Canada, and Latin America (Americas) based on the global patient advocacy strategy. The rare disease therapeutic area of focus is Hereditary Angioedema (HAE).

Responsibilities

• Contribute to the Global Rare Disease patient advocacy strategy, reflecting Chiesi’s commitment to the patient community.
• Develop and implement plans to directly engage US and Canadian patient communities and share projects and programs with Chiesi Head Patient Advocacy LATAM Region, while working cross-functionally with key internal partners.
• Serve as the primary point of contact to build and maintain collaborative, long-term partnerships with stakeholders and patient advocacy groups, and compliantly exchange information related to Chiesi Rare Diseases areas of interest.
• Represent the patient perspective during strategy meetings and contribute to the successful implementation and achievement of business goals.
• Propose and implement patient advocacy programs and partnerships that include educational programs, advisory boards, patient speaker engagement, policy advocacy, and related initiatives.
• Work with advocacy groups to provide compliant resources to help them further develop, grow, and build capabilities.
• Champion the patient voice based on understanding the patient perspective to inform internal decision-making.
• Conduct engagements in adherence with legal, compliance, and regulatory guidelines to ensure Chiesi Rare Diseases relationships with advocacy stakeholders are respectful and appropriate.
• Represent Chiesi Rare Diseases at specific meetings and present when needed.

Requirements

• 5+ years of experience in the biopharmaceutical environment with at least 2 years of relevant professional experience in rare disease and patient advocacy.
• Bachelor’s degree in social science, public health, science, or related field.
• Strong communication, networking, and interpersonal skills; ability to build relationships and establish trust with a wide range of stakeholders.
• Good listening skills and ability to identify needs from multiple stakeholders; ability to translate terms and concepts to audiences with different perspectives and levels of understanding.
• Demonstrated passion for supporting patient and underserved communities.
• Ability to work collaboratively across all functions and levels of influence both internally and externally.
• Understanding of drug research and development, regulatory, compliance, and disclosure guidelines.
• Strong project and program management skills.

Advanced degree is a plus.

Location

Based in Boston and must be willing and able to travel nationally and internationally (approximately 40%).

Pay

The annual base pay for this position ranges from $128,070 to $156,530. Hourly and salaried non-exempt employees will also be paid overtime pay when working qualifying overtime hours. Base pay offered may vary depending on multiple individualized factors, including market location, job-related knowledge, skills, and experience.

Benefits

• Comprehensive healthcare programs.
• Work-life balance initiatives.
• Robust relocation support.
• Performance bonuses.
• Flexible working arrangements and remote work options.
• Tax assistance services for foreign colleagues.