Sr. Manager Patient Advocacy- Duchenne Muscular Dystrophy

About the role

The Senior Manager, Patient Advocacy-DMD supports the execution of enterprise and brand-level patient advocacy strategies across a rare disease portfolio. Reporting to the Executive Director of Patient Advocacy, this role collaborates cross-functionally to implement programs and initiatives that address the needs of patients, caregivers, and advocacy organizations. The Senior Manager-DMD plays a key role in managing day-to-day operations of advocacy initiatives, including program implementation, stakeholder engagement, and measurement of impact. This individual ensures alignment with both brand-specific and above-brand priorities, supporting enterprise-level initiatives and helping to advance the organization's patient-centered mission.

Responsibilities

• Serve as key operational and project management support to the patient advocacy team, ensuring smooth coordination across priorities and functions
• Collaborate with Director of Patient Advocacy and cross functional partners to implement programs, initiatives, and resources that address patient and caregiver needs
• Manage patient advocacy partnerships, including relationship development, sponsorship and grant oversight, and benefit fulfillment for partner organizations
• Service as point of contact for patient organizations and advocacy leaders, maintaining trust-based relationships through consistent, high-quality engagement
• Collect, analyze, and report on program metrics to measure impact
• Collaborate on the development and delivery of compliant patient-facing educational materials
• Lead the identification of patient advocacy events and identifying opportunities. Manage calendar of events and liaise with internal team members to secure appropriate cross-functional attendance
• Partner with the Director of Patient Advocacy to support budgets and vendor management
• Coordinate with the Director of Patient Advocacy to develop team meeting agendas, document action items, and ensure follow through on outcomes
• Manage inventory and budget of advocacy materials
• Participate in external vendor and partner calls as appropriate
• Represent the company at key patient advocacy events and meetings and create follow-up reporting

Qualifications

• Bachelor's Degree and 5+ years of experience in patient advocacy, corporate affairs, or a related function and or biotech/pharma sectors
• Proven ability to build and sustain relationships with patient advocacy organizations and community stakeholders
• Collaborative team member who is eager to work closely with colleagues
• Strong commitment to advocating for the needs of patient communities
• Excel in project management, prioritize tasks, organize and manage multiple projects requirements governing patient engagement in a regulated industry
• Willingness to travel approximately 30–40%, including evenings, weekends, and multi-day trips to represent the company at key advocacy events

Benefits

• Health, dental, and vision insurance
• Generous paid time off
• Retirement savings plan with Company Match

Pay

The base salary for this position will range from $170,000 to $180,000. Candidate experience, professional licensing, and geographic location will be taken into consideration.