Senior Director Patient Advocacy

Job Summary

We are seeking an experienced and mission-driven Senior Director of Patient Advocacy & Policy to lead our engagement with the patient community and shape and execute Vor’s engagement with the patient community. This individual will serve as a key interface between the company leadership and patient advocacy organizations, ensuring the patient voice is embedded across our business and reflected in decision-making, strategy, and communication.

Job Responsibilities

• Patient Advocacy Leadership
• Develop and execute a comprehensive patient advocacy strategy aligned with Vor’s mission, pipeline, and business objectives
• Serves as a primary point of contact for all patient advocacy groups, building strong, trusted, and enduring relationships
• Translate the needs and perspectives of patient communities into meaningful insights for internal teams
• Ensure the patient voice is consistently integrated into clinical development, regulatory affairs, policy, communications, and programs
• Lead patient-centric initiatives and engagements, including patient councils, listening sessions, and educational programs
• Continuously assess and refresh the advocacy landscape, maintaining regular engagement to align on short- and long-term priorities and initiatives
• Translate patient and community insights into actionable recommendations that inform internal strategy and decision-making
• Cross-Functional Collaboration
• Operate effectively within a matrixed environment, collaborating across multiple teams to embed patient insights into decision-making
• Provide strategic counsel to internal partners to ensure alignment between corporate priorities and patient community needs
• Partner with corporate affairs, communications, and policy teams to ensure consistency in messaging, outreach, and advocacy engagements
• Foster collaboration and open dialogue across teams to proactively identify solutions and enhance organizational effectiveness
• Organizational Impact
• Champion a culture of patient-centricity, building organizational understanding of patient experiences and needs
• Partner with internal leaders to inform strategy, shape narratives, and ensure transparency and alignment with the patient community
• Manage multiple initiatives and priorities with clarity, thoughtfulness, and strong project management skills
• Demonstrate a solutions-oriented mindset in a dynamic environment, supporting teams through change
• Ensure all activities are conducted in full compliance with company policies, industry standards, and applicable laws

Education & Experience Requirements

• 10-15 years of experience in patient advocacy, public policy, or related roles within small to mid-size biotech organizations
• Demonstrated success building and maintaining relationships with patient advocacy groups; existing relationships in the rare disease and/or cardiovascular community are a plus
• Experience connecting patient advocacy efforts with policy-shaping initiatives; understanding of the U.S. health policy environment preferred
• Strong cross-functional leadership skills with experience operating in highly matrixed teams
• Exceptional interpersonal, communication, and executive presence skills; able to represent Vor with credibility and empathy
• Proven ability to manage multiple priorities and drive initiatives in a fast-paced, evolving environment
• A collaborative, low-ego team player who is eager to grow with a mission-driven company
• Bachelor’s degree required; advanced degree in public health, public policy, communications, or related field a plus

Salary Range

The salary range for the Senior Director, Patient Advocacy is expected to be between $275,000 and $295,000 per year. Individual pay may vary based on multiple factors including but not limited to relevant job-related skills, experience, education or training, market factors, and work location.

Benefits

• Comprehensive health coverage
• Flexible paid time off
• Generous parental leave
• Competitive 401(k)

About the Role

Join Us in Tackling Autoimmune Disease at Its Root

At Vor, we believe science can do more than manage symptoms. It can change the course of disease. By advancing telitacicept, a first- and potentially best-in-class dual BAFF/APRIL inhibitor, we are silencing upstream survival signals and stopping downstream autoimmune cascades. Together, we are addressing disease at its root cause and rewriting what is possible for patients worldwide.

When you join Vor, you’re not just working on a medicine. You’re part of a mission to redefine the future of autoimmune care.