RN Care Manager(Navigator) Rare Hematology, Gene Therapy & Translational Research

Coordinate Complex Care. Advance Innovation. Change Children’s Lives. Cincinnati Children’s is seeking an experienced Registered Nurse Care Manager (Navigator) to join our highly specialized Rare Hematology, Genetic Hematology, Gene Therapy, and Translational Research programs. This is an exceptional opportunity for a BSN-prepared nurse who enjoys complex care coordination, multidisciplinary collaboration, patient advocacy, and working at the forefront of innovative pediatric medicine.

Our program is experiencing significant growth, with new patient volumes increasing from 66 patients in FY25 to 137 patients in FY26. As the population and complexity of care continue to expand, this role is essential to ensuring patients and families receive timely, coordinated, and comprehensive care.

About The Role

The RN Care Manager (Navigator) provides specialized support for eight physicians caring for patients with rare inherited bone marrow failure syndromes, genetic hematologic disorders, and other complex conditions. You will serve as a primary liaison among patients and families, physicians, advanced practice providers, genetic counselors, research teams, financial specialists, and other healthcare professionals. You will coordinate care across the continuum, helping patients navigate complex diagnostic evaluations, genetic testing, specialty consultations, treatment planning, gene therapy, research opportunities, and long-term follow-up.

Responsibilities

• Manage and coordinate care for a complex population of pediatric patients with rare inherited bone marrow failure syndromes, genetic hematologic disorders, and other medically complex conditions.
• Partner with eight physicians and multidisciplinary teams to coordinate comprehensive patient care.
• Serve as a consistent point of contact and advocate for patients and families throughout their healthcare journey.
• Coordinate complex diagnostic evaluations, genetic testing, laboratory studies, specialty consultations, procedures, and treatment plans.
• Coordinate the numerous clinical requirements associated with gene therapy, including specialty consultations, diagnostic testing, stem cell collection, treatment scheduling, and follow-up.
• Support patients receiving or being evaluated for emerging gene therapies, including Casgevy and Lyfgenia, with additional therapies anticipated as the program evolves.
• Coordinate insurance authorizations and financial requirements to help prevent delays in treatment.
• Monitor authorization expiration dates, treatment timelines, testing requirements, and scheduling needs and proactively address potential barriers.
• Coordinate care for patients referred from outside institutions and healthcare organizations, including regional referral partners.
• Facilitate communication between Cincinnati Children’s and referring providers to ensure continuity of care.
• Coordinate complex treatment plans for patients requiring therapies such as rituximab, IVIG, and enzyme replacement therapy.
• Provide education to patients and families regarding diagnoses, genetic testing, treatment options, procedures, gene therapy, clinical research, and ongoing care.
• Collaborate with genetic counselors, research teams, financial specialists, social work, pharmacy, laboratory services, and other specialty providers.
• Support translational research, clinical trials, registries, and other innovative programs as appropriate.
• Monitor patients throughout their care journey and ensure recommended evaluations, treatments, and follow-up are completed.
• Identify barriers to care and develop solutions that promote timely access and an exceptional patient and family experience.
• Participate in multidisciplinary meetings and contribute clinical expertise to complex care planning.
• Maintain accurate and timely documentation and communication across the care team.
• Serve as a clinical resource for colleagues and contribute to process improvement initiatives that enhance patient care and program efficiency.
• Evaluate the timeliness and availability of treatments and services and adjust the level of service according to changing needs.
• Evaluate actual patient outcomes in relation to expected outcomes for the care-managed population. Identify quality improvement opportunities and communicate them to the department's management/leadership team.
• Monitor the patient's progress in achieving the goals, objectives, and expected outcomes of the plan at specified time frames.
• Facilitate communication and coordination between members of the healthcare team across all phases of care.
• Lead the coordination of care, setting priorities and encouraging the appropriate use and timeliness of healthcare services.
• Facilitate a smooth transition of care by ensuring key components of the plan of care and/or patient needs are communicated to subsequent care providers.
• Implement the agreed-upon plan of care, providing self-management support to high-risk/complex patients and families.
• Plan with the patient, family, or caregiver and providers to maximize health outcomes and ensure quality, cost-effective care.
• Proactively identify medical and psychosocial services needed by the patient and reassess the plan of care accordingly.

Why This Role Matters

The Rare Hematology, Genetic Hematology, Gene Therapy, and Translational Research programs are rapidly expanding. The increase in patients being evaluated for and receiving gene therapy has created significant additional coordination needs. Patients pursuing gene therapy may require multiple specialty consultations, extensive laboratory testing, stem cell collection, insurance authorization, financial coordination, and highly time-sensitive scheduling. Treatment plans can require frequent adjustments based on clinical status, authorization timelines, and availability of required services. The program is also experiencing increased referrals from outside organizations and caring for more medically complex patients requiring coordination of multiple therapies and specialties. The RN Care Manager (Navigator) is essential to keeping these complex care plans moving forward. By coordinating services, anticipating barriers, communicating across disciplines, and advocating for patients and families, this role helps ensure timely access to care while reducing coordination burden on providers and clinic staff.

Requirements

• Current Registered Nurse license in the State of Ohio.
• Bachelor of Science in Nursing (BSN).
• Minimum of five years of professional nursing experience.
• Strong clinical judgment and critical-thinking skills.
• Demonstrated experience coordinating care for complex patients.
• Excellent organizational, communication, and problem-solving skills.
• Ability to independently prioritize and manage multiple complex patient needs.
• Ability to effectively collaborate with physicians and multidisciplinary teams.
• Strong patient advocacy and family-centered care skills.

Qualifications

• Bachelor's degree in a related field.
• ACEN/CCNE accredited BSN OR MSN OR Associate/Diploma RN AND 2+ years of experience and BSN/MSN.
• 5+ years of work experience.

Preferred

• Pediatric hematology/oncology experience.
• Experience with rare diseases or genetic hematology.
• Experience with bone marrow failure syndromes.
• Experience with gene therapy or cellular therapy.
• Care management, nurse navigation, or nurse coordinator experience.
• Experience coordinating clinical trials or translational research.
• Experience with insurance authorization and financial coordination.
• Experience with stem cell collection or transplantation.
• Certification in pediatric nursing, oncology, care management, or a related specialty.

Benefits

At Cincinnati Children’s, you will work alongside nationally recognized experts who are advancing treatment for rare and complex pediatric conditions. This is an opportunity to be part of innovative programs involving gene therapy, translational research, and emerging treatments that have the potential to transform the lives of children and families.

Pay

Expected Starting Pay Range: $81,723.20 - $104,208.00. Starting pay is based on experience, skills, and equity; exceptions may apply for highly qualified candidates. Additional pay (e.g., shift, on-call, or weekend differentials) and benefits may apply. Annual pay may vary based on FTE status.

Schedule

• Shift: Day (United States of America)
• Schedule: Full time
• Weekly Hours: 40
• FTE: 1
• Employee Status: Regular
• Hours: Monday–Friday