Clinical Research Coordinator

About the role

The Frontotemporal Dementia (FTD) Program Project Grant (PPG): Genes, Images, and Emotions is a large research program within the UCSF Fein Memory and Aging Center (MAC). The purpose of the FTD PPG is to help understand the clinical, genetic, imaging, emotional, and diagnostic features of FTD. The study collects longitudinal clinical, imaging, behavioral, and autopsy data to be analyzed with the goal of improving clinical care for patients with FTD.

FTD is a rare neurodegenerative disease that causes behavioral, language, cognitive, and/or motor changes that profoundly impact the patient and their families.

Responsibilities

• Identify subjects, develop recruitment and retention strategies, and screen and enroll study subjects.
• Schedule subjects for study visits; meet with them to administer questionnaires, collect medical history, and perform study procedures.
• Maintain rapport and relationships with subjects to ensure effective communication and retention; respond to their diverse needs, schedule follow-up appointments, and become their intermediary; discuss study outcomes with providers to ensure continuity of care.
• Obtain informed consent; review information with subjects; assess and advocate for patient safety throughout each protocol procedure.
• Oversee subject reimbursement; work to resolve discrepancies and issues.
• Care for and manage study databases, ensuring data quality and accuracy.
• Conduct reviews of medical charts and electronic records to extract medical information and other data for use in studies.
• Implement needs assessments and recommendations for enhancements on patient coordination, data collection, data management, protocol adherence, and study collaboration.

Qualifications

• HS graduation and sufficient experience and demonstrated skills to successfully perform the assigned duties and responsibilities.
• Attention to detail; strong interpersonal skills; excellent, effective verbal and written communication skills to coordinate with subjects, team members, other departments and outside institutions; and the ability to multi-task in a fast-paced environment while working with a diverse subject population.
• Ability to work well independently, complete projects in a timely manner, and prioritize multiple projects to ensure the completion of essential tasks by deadlines.