Senior Manager, Patient Advocacy

Role Summary

The Senior Manager, Patient Advocacy is a strategic and execution-focused role responsible for building trusted relationships with patient advocacy organizations, elevating the patient voice, and delivering compliant, high-impact programs that advance disease education, access, and outcomes. This role partners closely with Medical Affairs, Clinical Development, Market Access, Corporate/External Affairs, and Commercial to ensure patient insights inform decisions from early development through commercialization, and represents the company at patient events, advisory boards, and key congresses.

About the role

This role is based in Sleep Hollow, NY, on-site 4 days/week. Travel approximately 25–50% for patient engagements, conferences, and advocacy meetings; some evenings/weekends may be required based on community schedules.

Impact and scope

With Patient Advocacy leadership, lead execution of therapeutically aligned patient advocacy strategy in assigned therapeutic areas. Apply and adapt standard methodologies and governance frameworks for engagement with advocacy and professional societies. Identify opportunities to enhance processes and ensure alignment with evolving business needs. Collaborate with cross-functional partners in Medical, Commercial, Market Access, Policy, and Clinical Development to support established advocacy strategy. Accountable for delivering measurable improvements in disease awareness, time to diagnosis, clinical trial awareness, access, and patient experience.

Responsibilities

• Assess shifting company priorities and external dynamics to inform strategic decisions, recommending strategic choices and trade-offs with clear implications for patients and the business.
• Evolve therapeutic area advocacy strategies and operating plans, including educational programs, disease awareness, advisory boards, patient speaker engagement, clinical trial awareness, and coordination on relevant policy initiatives.
• Lead the development and execution of advocacy campaigns; ensure external partner plans align to Regeneron’s goals and compliance standards.
• Coordinate and design patient advisory boards and insight-generation activities, ensuring strategic alignment, high-quality outputs, and effective dissemination of insights to inform decision-making. Ensure materials developed for advisory boards are accurate, inclusive, and compliant.
• Serve as a trusted advisor to leaders; create materials/presentations that articulate patient impact, risks, and demonstrate Patient Advocacy’s role in supporting Regeneron’s business objectives.
• Represent the company at advocacy meetings, conferences, and coalition activities; identify collaboration opportunities and areas of mutual interest.
• Monitor policy and access topics impacting patient communities and partner with internal stakeholders on advocacy positions and engagement plans.
• Build and maintain long-term, trust-based partnerships with patient advocacy and professional societies at national and regional levels; serve as a responsive, empathetic point of contact.
• Ensure Regeneron’s leadership position is evident through presence at priority events; synthesize and disseminate insights to internal stakeholders.
• Build strong, collaborative relationships with Medical, Commercial/Brand, Market Access, Government Affairs, Health Policy, Clinical Development, and Legal/Compliance.
• Drive cross-functional alignment and execution of advocacy initiatives; co-create plans with Alliance partners where applicable.
• Contribute to therapeutically aligned assigned strategy and annual planning and budgeting.
• Elevate patient voice, such as advisory boards, listening sessions, and patient storytelling, ensuring insights inform clinical development and commercialization plans.
• Champion a patient-centric mindset and provide the patient perspectives to inform clinical trial design, evidence generation, disease education, patient services, and access strategies.
• Strategically fund programs that advance patient engagement and disease education aligned to therapeutic priorities.
• Act as a grant reviewer as part of a compliant grant review process; manage budgets and financial stewardship effectively and in a timely manner.
• Ensure all interactions adhere to legal, regulatory, and compliance standards; maintain high transparency and trust with stakeholders.

Qualifications

• Bachelor’s degree required; advanced degree a plus (e.g., MPH, MS, MA in Communications/Health Policy).
• 8+ years of industry experience, patient advocacy, community engagement, or related roles within biopharma/biotech or patient organizations.
• Experience building high-trust partnerships with diverse stakeholders, stakeholder management; proven ability to translate insights into action.
• Strong project management skills with experience executing multi-stakeholder programs and events on time and within budget.
• Excellent communication skills (written, verbal, and presentation) with executive presence.
• Working knowledge of clinical development, real-world evidence, market access, and the compliance environment for patient interactions (e.g., sponsorships, fair market value, privacy, AE reporting).
• Comfortable operating in a matrixed, fast-paced environment with shifting priorities.

Preferred

• Experience in rare diseases, oncology, hematology, and/or cardio-metabolic.

Reporting and Collaboration

Reports to Director, Patient Advocacy. Key Internal Partnerships: Medical, Commercial, Market Access, Government Affairs, and Health Policy.

Salary Range (annually)

$134,400.00 - $219,200.00