Rare Disease Program Specialist

Key Duties and Responsibilities

• Manage the order fulfillment process for the delivery of material aid to partners
• Cook with other Rare Disease Program staff to schedule shipment activity based on patients’ needs and geographic location
• Develop shipping documentation to facilitate the importation process
• Help vet new Rare Disease partner applicants and maintain partner accounts in CRM
• Develop awareness of customs and logistics processes
• Collaborate with the Operations, Program Operations, Transportation, and Corporate Engagement teams as needed for efficient and timely processing of product donations and shipments
• Manage Transportation relationships specific to the Rare Disease Programs, including invoice submissions and reporting
• Provide overall customer/partner support answering questions via phone and email, as needed
• Monitor medical supply inventory for various Rare Disease Programs
• Communicate with donor company staff to relay product forecasting needs in line with programmatic activities
• Aid with Donor report preparation on a monthly, quarterly, yearly basis
• Represent DR at collaborative meetings, conferences, and other forums
• Prepare monthly shipping reports and usage reports for programmatic reporting

Required Knowledge, Skills, and Abilities

• Bachelor’s degree or equivalent work experience; familiar with computers and standard software applications such as Microsoft Windows, Word, and Excel
• SAP or similar ERP system preferred
• Familiarity with CRM systems
• Proficient in Excel
• Multi-tasking skills and the ability to manage and prioritize multiple projects
• Able to provide a high level of customer service to our partner
• Able to interact and manage external parties with professionalism, discretion, and understanding of patient privacy
• Strong communication skills, both written and oral
• Detail oriented with the ability to take initiative and work independently

Physical Demands

• Prolonged periods of sitting
• Must pass (clear) toxicology screening

Travel Requirements

• Minimal travel for conference, trainings, other opportunities