Fundraising Consultant

We are seeking an experienced Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally. We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community. The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels. Responsibilities Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizationsProven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodiesExperience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platformsStrong skills in grant research, proposal writing, donor communications, relationship management, and presentationsAbility to translate complex medical or scientific information into clear, credible, and compelling donor messagingResourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population Requirements Develop and execute a diversified fundraising strategy across individual giving, major gifts, corporate partnerships, grants, sponsorships, and crowdfundingIdentify, cultivate, and engage prospective donors, foundations, corporations, government funding bodies, and strategic partnersCreate fundraising narratives, cases for support, proposals, presentations, sponsorship packages, and donor communicationsPlan and manage digital fundraising campaigns through GoFundMe or similar fundraising platforms, email, social media, and other online channelsBuild donor stewardship programs that strengthen relationships, encourage recurring giving, and improve retentionEstablish fundraising targets, timelines, budgets, reporting processes, and performance metrics