Director, Global Patient Advocacy

Why Join Intellia?

Our mission is to develop curative genome editing treatments that can positively transform the lives of people living with severe and life-threatening diseases. Beyond our science, we live our four core values: One, Explore, Disrupt, Deliver. We have a single-minded determination to excel and succeed together. We believe in the power of curiosity and pushing boundaries. We welcome challenging thoughts and imagination to develop innovative solutions. And we know that patients are counting on us to make the promise a reality, so we must maintain high standards and get it done. We want all of our people to go beyond what is possible. We aren’t constrained by typical end rails, and we aren’t out to just “treat” people. We’re all in this for something more. We’re driven to cure and motivated for change.

Responsibilities

• Develop and implement a coordinated global patient advocacy strategy for ATTR amyloidosis, aligning with corporate goals and priorities based on deep understanding of the patient/caregiver experience and unmet needs
• Serve as an organizational expert on patient advocacy, providing insights, best practices, and guidance across teams within the strategic therapeutic area of responsibility
• Cultivate enduring relationships with leading patient organizations to advance Intellia program objectives
• Drive an innovative, cross-functional approach to community partnerships aligned with Intellia program-related priorities
• Collaborate with patient community to generate patient-experience data that shapes clinical practice and advances access
• Adequate patient/caregiver insights and implications for Intellia programs are systematically actioned across Medical Affairs and with cross-functional partners
• Advance Intellia program-related priorities through compliant sponsorships, educational grants, and execution of program benefits
• Be responsible for the annual budget related to program patient advocacy initiatives
• Adhere to relevant internal policies and industry regulations
• Partner with patient organizations to educate and mobilize patients to seek optimal care and elevate the voice of the patient to inform decisionmakers in the patient treatment journey, including HCPs, policymakers and payers

About You

• Self-starter with the ability to work collaboratively and the desire to work on a cross-functional team
• Exceptional oral, written, interpersonal, and presentation skills, with experience translating scientific information to plain language
• Proven ability to establish and maintain strategic partnerships with advocacy groups, patient leaders, and caregivers
• Strong budget management and ability to direct and manage vendors to ensure successful implementation of initiatives
• Understanding of pharmaceutical clinical development and product life-cycle management
• Consistently represents the company with the utmost level of professionalism with internal and external stakeholders
• Undergraduate degree is required; a graduate degree in a relevant area such as nursing, pharmacy, genetic counseling, social work, public policy, or public health is preferred
• Minimum 5-7 years of experience in the bio-pharmaceutical environment with at least 4 years of relevant experience in rare disease and patient advocacy; experience in Amyloidosis highly preferred
• 5+ years of experience leading and developing teams, with demonstrated success in building high-performing functions
• In-depth understanding of the healthcare, pharmaceutical, and biotechnology industry is required
• Solid understanding of relevant regulations and guidelines (e.g., FDA, EMA)
• Willingness to travel (role anticipated to have about ~25% travel component)
• Manual dexterity for keyboarding; may include repetitive movements